It
has
been
a
long
week.
.... And it's only Wednesday.
But! We're hanging in there, we can feel that people are praying for us, and God has been loving on us in spite of some stormy weather.
Monday:
I took Judah for his 6 month check-up (a month late...) but mostly wanted to discuss Judah's skin rash that first appeared about 6 weeks ago. My doctor says it's eczema and she told me to pick up some Glaxal Base for it - something my dear friend Anne already suggested but I had yet to actually purchase. I haven't had too much success with it yet, but I really don't love using cortisone cream, so I'll give this a good try!
(For those of you who are interested in stats... Judah is just over 7 months, weighs 16 lbs 8 ounces and is 26.5 inches long. He's on his own little [literally] curve, falling between the 5th-10th percentile for both height and weight. But he's got cute little fats! :) )
Later that day we went to the orthotist to have Helmut adjusted. Alan the orthotist suspected that Judah's infection was actually the result of an allergic flare up. After making the appropriate adjustments, we left the clinic, Helmut firmly in place, with instructions to monitor Judah's carefully in next few days for a reaction. But here's the kicker: IF Judah's rash were to return we would need to head back to Children's Hospital for another head scan, another two week wait, and a brand new helmet crafted from a different material. This new helmet would be softer and denser - resulting in a helmet that is more difficult to work with, causes worse sweating and has the potential to be less effective than the regular Starbands.
So off we went, praying that his rash from last time was just a fluke and not a predisposition.
We arrived to find David home very early and packing his overnight bag. His dear mom has been battling cancer for a few years and it looks like she'll only be with us a few more days. David, being the wonderful son he is, decided to go to Abbotsford to stay with his parents and spend precious final moments with his mom before she heads home to Jesus her Lord. We are so grateful for the family and friends that have prayed, encouraged and supported us during this sad and difficult time - thank you!
That same afternoon it was evident that Rash was returning. Rash is not our friend. He is sneaky and fiendish and downright cruel. I sent a few pictures to Mel and Alan at Valley Orthocare, and received a call almost immediately. Alan wants to see Judah again on Thursday of this week - and we're supposed to leave Helmut on as long as possible to see to what extent Rash peaks. That... Well, it seems somewhat like child abuse to me! I've been taking Hawk's temperature frequently and removing Helmut to check for abrasions. So far it's not nearly as bad as when the infection set it, but a persistent Rash it surely be.
On top of that we've been told that Judah's monthly physio appointments may not be aggressive enough to witness any significant progress on Judah's neck strength. So I'm waiting for a call back from a children's physiotherapist who specializes in torticollis cases. Hopefully we'll be able to tell after the initial appointment whether or not her methods are superior to our current treatment.
Babies are great for your prayer life, eh? And I seriously don't know how people get through life without Jesus.
You hear? If you're not living for the Lord then go get your butt in gear in gear! Life is fragile, finite, and uncertain. God is real, loving, merciful and offers the only hope humanity has ever known.
Rant over. Wanna talk more? Call me.
Grateful for your prayers :).
Heading to bed.
Will update soon.
"The Lord grants sleep to those he loves." Psalm 127:2
13 comments:
Such a great way to update us folks Janelle. Always praying - especially through these trying times. Love you and am here for anything... xoxoxo C
Awh, love you Janelle!
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